Summer has officially started for me. Last week marked my last final and class of the semester. I completed my first 5k of the race season, the family participated in a very successful Angelman Syndrome Foundation walk a thon in Buffalo NY, and I am looking forward to the 8k race this weekend at GLASSFEST!
I would like to take a moment to thank everyone who came out to the walk in Buffalo last weekend. It was great to see you all and have your support as we raised money and awareness for Angelman Syndrome. I know Arianna enjoyed seeing everyone and meeting new friends. It is such a short time we get to spend with you all but we look forward to it so much! I think Ari's favorite part was the "pool" in the room. Rob booked an amazing hotel with a 4 person hot tub in the room (the girls had a blast).
Thank you to the Sell family who hosted us on Friday night for dinner and drinks. Such a fun and relaxing time to get to spend with one another.
Arianna is having a blast in her Challenger Little League. She is finally getting the concept of the game, but still thinks that the outfield is for snack time :)
She prefers dad to piggyback her around the bases (she is a Dutchess after all).
We are celebrating Amelia's birthday this weekend with cake for both girls this weekend(since Ari's birthday was snowed in last February). I can't believe how grown up they have become. It seems like overnight they have grown two inches each in the past month!
Race fundraising is going to kick into high gear soon. I will be sending out personal emails and letters to all our friends and family asking for support. We are hoping to raise $5000 for Angelman Syndrome Research. My philosophy is if everyone can contribute a little ($1-$5 and up)we can meet and exceed this goal. Please consider sharing our goal with your friends and family. Your donation could be the dollar that funds the cure and major therapeutic to help Arianna speak, be seizure free, and participate in school the way she so desperately wants to.
You can donate at the link here on the blog or cut and paste:
If you want to come out to Glassfest this weekend... the 8k is Saturday morning beginning at the War Memorial Stadium in Corning at 8:30am (I will probably finish at 9:30 at the stadium--- I run, but not fast :)
Thank you to those who have contributed so far:
Eileen M Wayne
Lisa Webber
Candelyn Tong
Jenn Basler
Nana Nance
Beres Family
Ilyse Seven
Leslie Morris
Harli Kirkpatrick
Angelrunners.com
Jeannie Stith
Sue Cook
Stacie Vetterli
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Hi Stephanie, I recently found your blog on another AS parent's facebook. I just donated to you your Marathon, I wish I could have donated more! I also talked about you on my blog.
ReplyDeletehttp://zfam07.blogspot.com/2011/05/angleman-syndrome-angelman-syndrome.html